Showing posts with label Biopsy. Show all posts
Showing posts with label Biopsy. Show all posts

Friday

Un-Results

Waiting for the doctor to call to give me some results on my bone marrow biopsy. Waiting, waiting. Then the time comes to leave for San Francisco to see the mouth specialist to check the progress on my OLP.

Kats is driving and I'm checking my cellphone to see if a call had come through and I hadn't heard it. Then I notice the battery is dead! I call the clinic from Kats' cell to tell them to have the doctor call his phone. I explain the situation.

"So sorry Dr. Wong is not here today"

"But, he was supposed to call me and tell me some results today. He thought some might be in by now. Maybe they didn't come in and that's why he didn't call. Can  you check and see?"

On hold

"I don't see any results in your chart yet, but if you like, we can have Dr. Wu call you as soon as they come in. Dr. Wu is in the office today."

"Yes. Yes. That will work" and I provide the number for Kats' cell. I hang up and start to cry.

We are driving on a curvy mountainous road (Highway 17) in the midst of traffic. The cops are sitting on the edge of the road with their radar guns going. Too many people speed on this highway, crash their cars, and get killed, or kill others. Driving this road can be harrowing at certain times of the day. We are in that targeted time slot.

"Why are you crying?" Kats asked.

I dry my tears, blow my nose. "I don't know. It's silly really. It doesn't matter whether I get the results today or not. I don't have a computer with me to research what the results would mean."

"You can use my iPad.It's in the back seat" he says. But, we wouldn't have any internet access, so I say, "Yeah, Let's play Angry Birds!" and we laugh.

Why not find something silly to laugh about? Crying isn't going to change the situation except perhaps bring me down into misery. I can do that real well, if I let myself. Not necessary! Ain't doing that! I have a choice how I want to be. Perhaps some other time I wont have the control to stop it, but today, I can.

I'm feeling such a dunce. I run an online support group for chondrosarcoma patients. I know a lot about bone cancer, but nothing about Leukemias. It's like knowing a lot about riding a bicycle, but not a thing about shearing sheep. Riding a bike was important to me once. But now shearing sheep is a life or death matter! Okay, not that bad. But I can't leave a stone unturned. I like to know ALL the facts, even the ugly ones, even if they may never affect me. I'm like the kid who counts all the Cheerios in the box, lining them up on the table before he eats his breakfast. I want to check it all out.



In the case of the blood marrow results. There are certain numbers they are looking for attached to certain alphabets. I want the code. I want to break the code. And I wanted it yesterday! Damn! Why must I wait for my Cheerios?

Granted Dr. Wu may call me on Monday and let me know. He's not my doctor. He's the partner of my doctor. and that's okay by me. I already knew that Dr. Wong would be going out of town until the 17th. I just didn't realize he would be leaving on today... before he would call me. I misunderstood, I guess.

I am a horse at the gate impatiently awaiting the signal. I want to get my self on that fast track. I want to dig my hooves into the dirt and kick up the dust. I want to work up a sweat. I WANT TO KNOW EXACTLY WHAT I AM DEALING WITH!

I hate mysteries!

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First photo taken by my brother, Roger. Second photo taken by me while attending a fundraiser for Sarcoma.

Wednesday

Bone Marrow Biopsy

Off to have the biopsy today. I'm not sure about why it is necessary, as they already have blood results. I will have to study up on this. 

I was diagnosed with CML last Tuesday as previously mentioned. The Bone Marrow Biopsy is in a couple hours from now without anesthesia. 

When I mentioned this to facebook friends I got a two to one "vote" against it. Four people said don't do it without anesthesia because they had a friend who said so. Two said it was not that bad because that is was their experience through with their ALL (a different type of Leukemia than I have, more severe). 

I got another opinion from a young man in my autobiography writing class who has seven years survival with ALL. He said his first bone marrow biopsy was done without anesthetic when he was a teen and "that it must have been okay" because he doesn't even remember it. Later ones he had were with anesthetic. He doesn't know why.

So, here I go. Hope I won't be sorry that I'm doing this without anesthetic.



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Picture was taken in 1998 by Kats when we went to Lake Tahoe. 
This was in desert area on the way to Reno, Nevada, I believe