Wednesday

Bone Marrow Biopsy

Off to have the biopsy today. I'm not sure about why it is necessary, as they already have blood results. I will have to study up on this. 

I was diagnosed with CML last Tuesday as previously mentioned. The Bone Marrow Biopsy is in a couple hours from now without anesthesia. 

When I mentioned this to facebook friends I got a two to one "vote" against it. Four people said don't do it without anesthesia because they had a friend who said so. Two said it was not that bad because that is was their experience through with their ALL (a different type of Leukemia than I have, more severe). 

I got another opinion from a young man in my autobiography writing class who has seven years survival with ALL. He said his first bone marrow biopsy was done without anesthetic when he was a teen and "that it must have been okay" because he doesn't even remember it. Later ones he had were with anesthetic. He doesn't know why.

So, here I go. Hope I won't be sorry that I'm doing this without anesthetic.



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Picture was taken in 1998 by Kats when we went to Lake Tahoe. 
This was in desert area on the way to Reno, Nevada, I believe






Tuesday

Bone Marrow Transplant??


My friends are asking me if there is anything they could do to help me, I couldn't think of anything except to continue to be friends and be supportive.

But, now it occurs to me that there really is something they can do. Something important.

Even though I might not need a bone marrow transplant for a long time, I hope this will be something given consideration by you, the reader. It might not necessarily benefit me directly, if we're not a match. If everyone would be willing to become a bone marrow donor, certainly they could help someone in the same situation as me. And people would not needlessly die for lack of a bone marrow donor.

One does not need to give up their bone marrow right at the beginning. All that has to be done is to take a swab of the inside of the cheek to check the DNA to find out if there is a match. The records will be kept on file. Then if someone needs a bone marrow transplant the donor will be requested to donate.

I've heard rumors that it is terribly painful. Not true.
I've heard rumors that it hurts the donor more than the recipient. Give me a break! The recipient has been through tons of chemo, hardly has any healthy blood left in their body, is weak and already suffering much more than the donor can imagine. Plus, it is not so difficult as it once was. Sometimes it can simply be a matter of donated blood for stem cells to be harvested.

You can become a Bone Marrow Donor! Save someone's life! Read up on it before saying no. Educate yourself! Okay? Thanks!

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I took the picture above. It is in my own backyard. A friend once mailed me this cow pelvis. We both had the same kind of bone cancer in the same part of the pelvis. I think it is cool. I suppose some might not think so. This view, by the way, is right outside my bedroom window.

Thursday

Leukemia Diagnosis Today


After a great deal of tests and results, I was diagnosed with Leukemia today. There is no doubt about it. No if's, and's or but's. The kind I have is called Chronic Myelogenous Leukemia. I was diagnosed through Palo Alto Medical Foundation Oncologist and Stanford University Pathologists. They know what they are doing. 

Right now I am in the early stages. So, I am not too sick. Just bone pain and tiredness, low stamina and tummy problems, which is common for me considering my history. It's just a lot more, plus NIGHT SWEATS!!!

The chemotherapy is going to be in pill form, so I won;t have to be hospitalized. I will take it everyday for the rest of my life, or until my body rejects it. When or IF that happens I will requrie a bone marrow transplant. The ideal would be if it would be derived from my brothers or sister, if we match. That will have to be determined later. Maybe years later. Like I said. this kind of cancer is chronic. It is my understanding that it can be well controlled for some time.

I am not freaking out about it. The doctor seemed to be a little confused that I didn't cry or act disturbed or angry. I really felt little. It just seems like one more thing...  After all, I have lived 43 years beyond the diagnosis of my previous cancer, Chondrosarcoma, (which is not related to CML in any way whatsoever). So all those years have been a gift and this somehow just seems like a fly on the window screen. 

But, I do feel profoundly sad.

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Picture was taken by Kats at Rio Del Mar Beach, Aptos, California. This is right near the spot where we fell in love.

Wednesday

Bothered

I never know how to describe this feeling. It's not entirely a panic attack at all. More like feeling anxious, or distraught for no reason. Feels sort of like I had a gallon of coffee and have all that caffiene running through me. But, not in an energizing way. If feels more like a baseball glove pressed hard against my face, or a tarantula with a grip.



I do not know what might be bothering me emotionally, or if anything is bothering me at all. Is it just a physiological sensation? Or is there a mental pressure wanting to be worked out. I don't know. I have no choice but to stay with it and just see if I can make it go away or at least diminish enough to feel less like I'd rather be jogging!

Went to reading group yesterday afternoon. First dropped by to get my allergy shot and learned I was there on the wrong day.

Monday

Some Thoughts on Cancer Treatments

In regards to the idea of hyperimmunity, one of the concepts that come across in many people's minds about cancer is that the immune system needs boosting. Therefore, high doses of vitamins or herbs might be used unjudiciously. There is a lot of information out there supporting this idea, and mostly it's a lot of quackery.

I went with Helen, my now ex-housekeeper, to a local cancer support resource center the other day. She comes from an ethnic group that very much uses certain herbals and alternative practices. She's Navajo on one side and Filipino on the other. She is due to begin chemo for her stage 4 colon cancer next week. She's already had a foot and a half of colon removed, an ovary as well as some nodules in her liver. When she asked about supplementing her intake with a certain immune boosting herb common to her culture, the Nurse Practitioner gave a great answer.

"When you have a group of cancer cells clumped together, they need oxygen, so they start to grow blood vessels in order to get some. One of the things that immune boosters do is provide a way for our body to be at it's best, therefore it gives the opportunity for the cells to grow better, stronger blood vessels. Especially in the case of those recieving chemo or radiation, the treatment is to make it difficult for the cancer cells to grow and deprive them of oxygen and other nutrients. So supplementing is going to interfere with the treatment. After treatment is over with, then the immune system can be encouraged to bring the patient back to health."

By the same token, when we are dealing with Chondrosarcoma, I keep this in mind. Though chemo or radiation do not work, except in rare circumstances, surgery is absolutely necessary.

When we have been cut into and cut to the bone, our body is in major stress, and it is putting all it's energy into healing so it puts everything it can into the process (and this can take up to a year for bone to heal). If we are taking high doses of "super supplements" we are taking a chance of increasing the growth of possible cancer cells that might still be in the body.

I am not against complementary treatment. I've done a great deal of it myself over the decades. I've also done a lot of stupid stuff, simply because it was popular. Raw liver, apricot pits, seaweed and powdered chalk for example. They were once the rage. I've done a lot of weird stuff out of fear. (more on all that later). But finally, I learned to research and verify whether something was honestly useful. The best source of verification is in Pubmed, which is the National Library of Medicine the world's largest medical library. where all medical articles are kept.

One thing I feel strongly about, and quite frustrated too, is when someone who is diagnosed and then talks bad about the modern practice of medicine. I don't know if I will ever understand the dichotomy. How can one who is against medicine even get diagnosed without benefiting from all the science that allowed for diagnosis, (and treatment)? Any why are they going to doctors in the first place if they are against them?

One thing I've noticed about having Chondrosarcoma, is that it really makes me take a look at how I lived my life before Chondrosarcoma. Making changes in diet, sleep, exercise and so on seems to be a natural progression. Even those with a healthy lifestyle might need to step back and take another look at it.

Some folks think the more exercise you do, the more healthy you are. I don't think so! Sometimes we can overstress ourselves in the exercise category, for example, by pushing beyond what is healthy. Then we end up with inflammation of the muscles and joints. Inflammation will encourage chondrosarcoma to grow.

Getting enough sleep seems to be pretty much ignored even by those who give great advice and information on healthy living. So much research shows that people who get enough sleep are healthier. It gives the body a chance to heal itself. A healthy full night's sleep is difficult for me to maintain on a regular basis. Therefore, the fluctuations in my well being.

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Art by Elizabeth Munroz

Sunday

CBC Blood Test Results

Component Results

ComponentYour ValueStandard RangeUnitsFlag
White Blood Cell Count15.34.0 - 11.0K/uLH
Red Blood Cell Count4.553.90 - 5.40M/uL
Hemoglobin14.212.0 - 15.5g/dL
Hematocrit43.335.0 - 47.0%
MCV9580 - 100fL
MCH31.227.0 - 33.0pg
MCHC32.831.0 - 36.0g/dL
RDW13.7<16.4 -  %
Platelet Count434150 - 400K/uLH
Neutrophil6649 - 64%H
Neutrophil Bands20.0 - 10.0%
Lymphocyte2326 - 46%L
Monocyte30 - 12%
Eosinophil20 - 5%
Basophil20 - 2%
Metamyelocyte20 -  %H
Abs. Neutrophil10.12.0 - 8.0K/uLH
Abs. Band0.30 -  K/uLH
Abs. Lymphocyte3.51.0 - 5.1K/uL
Abs. Monocyte0.50.0 - 0.95K/uL
Abs. Eosinophil0.30.0 - 0.6K/uL
Abs. Basophil0.30.0 - 0.2K/uLH
Abs. Metamyelocyte0.30 -  K/uLH